Working from HQ today. (Actually, I’m taking a break to blog because nobody answers their phones in the middle of the day, so I’m not getting far with my call sheet. Let’s just hope my candidate doesn’t walk out of her office and see I’m not working.)
I’m utterly exhausted. I didn’t get much sleep after my PTSD freakout last night. I still don’t know who the hell was banging on my bedroom window at midnight or why, but I guess things are okay because I didn’t get raped or murdered in my sleep and no one was outside the house this morning.
In the middle of a meeting this morning with two potential volunteer leaders, one of whom is a delegate to the convention, my colon threw a temper tantrum, and I had to excuse myself quickly. (Luckily, I was not the one leading the meeting, so it wasn’t as embarrassing as it could be.) I’m bleeding again, plus crapping out bright red-orange oily bubbles. I haven’t eaten anything orange lately, so I have no idea what my colon is doing. And now, this afternoon, the pain is coming back. One week off the Entocort, and I was just starting to think it would be okay this time. I haven’t ended up in the ER yet, but clearly my body doesn’t like going off the steroids. This is bad for many reasons–long-term steroid use can screw with bone mass, teeth, and thyroid function, and in cases of UC where the patient is steroid-dependent, they’re much more likely to end up needing surgery.
So I have to call and get an appointment with my gastroenterologist again. Fun times. I was finally getting to the point where I wasn’t spending my entire life in his office, but apparently my colon has other plans. It’ll probably been at least a month before I can get an appointment, and it’ll be a pain to fit it into my schedule with all the campaign stuff going on. But I also can’t be crapping myself at the convention (T – 45 days and counting). Hopefully he can tell me over the phone to go back on the Entocort so things don’t get worse before I can get an appointment. He’s done that before, so he’ll probably do it again.
But now I’m afraid to have any caffeine or Adderall because stimulants + diarrhea = bad. So I can barely stay awake right now.
I hate UC.