I’ve got severe cramping pain, bad gas, and nausea–the usual beginnings of a flare. I was JUST getting over the last one. There’s no diarrhea or bleeding so far, but it won’t surprise me if that starts soon too.
I’m going to try to wait until tomorrow and see if it lets up. If not, I’ll call my GI doc and see what he wants me to do. I really don’t want to go back to the ER. I was there between Thanksgiving and Christmas, and they were nice but clueless about treating UC. They gave me fluids, Zofran, and morphine, tested me for C. diff., and sent me home. That’s not going to make any real difference.
Problem is I’m kinda running out of treatment options. The only thing I haven’t tried yet is Remicade (infliximab). My GI doc has previously mentioned the possibility of upping my Humira from once every two weeks to once a week, but I don’t think my insurance will pay for that. I’m not sure how difficult it would be to get them to approve Remicade, either. I know a lot of people have a lot of trouble getting insurance to pay for it because it’s so expensive.
There’s another biologic drug that’s on the FDA’s hot list for quick approval, possibly as soon as May 2014, vedolizumab. From everything I’ve read, it sounds a lot like a miracle drug for UC–not a cure, but a better treatment option. It’s similar to Humira and Remicade in that they’re all monoclonal antibodies, but it works only in the gut and consequently has fewer scary side effects than the biologics currently on the market. (You know, stuff like leukemia, lymphoma, and death.) I’ve looked for clinical trials in the hope of getting it before the FDA approves it, but there aren’t any in my area.
I’m just so tired of constantly being sick. I get a few weeks of okayness, and then BOOM! FLARE TIME! This isn’t working for me.